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LEAD Grants

Local Empowerment for Advocacy Development (LEAD) Grants

CSL Behring’s Local Empowerment for Advocacy Development (LEAD) Program is designed to provide support to patient organizations for development of state-level programs focused on advocacy initiatives with public officials. Public policy affects many aspects of patient care and access. The LEAD program supports the capacity for organizations to address these and similar issues with state policy makers.

LEAD Grants – These grants (typically, but not always, $10,000) are intended to help promote and develop advocacy development on the local level by helping further an existing advocacy initiative; providing assistance in developing a new initiative; building a grassroots capabilities. LEAD Grants enable local organizations to implement special advocacy initiatives.

Local Empowerment for Advocacy Development (LEAD) Grants

CSL Behring Local Empowerment for Advocacy Development (LEAD) Grants are community-based grants of approximately $10,000. CSL Behring will award LEAD Grants to organizations that submit proposals demonstrating that financial assistance would help them address important local and state advocacy issues and initiatives.

Local patient organizations have already demonstrated significant leadership in tackling complex legislative and regulatory public policy issues. Advocacy can, however, be costly. CSL Behring LEAD Grants will help defray these costs. Moreover, CSL Behring will work with the grant recipients to advance their objectives in order to succeed.

In order to qualify for a LEAD Grant, a local organization must be:

  • A recognized patient advocacy organization representing individuals who use plasma/recombinant therapies to treat bleeding disorders, immune disorders, hereditary angioedema, Alpha-1 deficiency or other conditions,
  • A non-profit organization with 501(c)(3) tax status, and
  • An organization currently addressing a specific advocacy issue related to public policy at the state or local level or intending to address such an issue.

Examples of Advocacy Issues for a LEAD Grant

  • Pursuit of legislation or regulations that will increase access for individuals to obtain their plasma-derived or recombinant therapy.
  • Efforts to defeat or overturn restrictive formulary proposals by a state Medicaid or an insurer.
  • The creation of a grassroots program to lobby the state legislature or regulators.
  • Creative advocacy endeavors designed to address a local public policy issue or to positively impact users of plasma-derived and recombinant therapies.

Recipients of LEAD grants will be required to submit a status report on the progress of the project six months following the grant award and to provide notification, including results, upon completion of the project.

Please submit the lead grant application to be considered. http://www.cslbehring.com/patient-commitment/lead-program/lead-grant-application.htm

CRP16-05-0001 05/2016
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